Medical Privacy of One Vs Safety of Many – Who Decides?

Across the world and in about 12 countries in particular families and loved ones are reeling from the tragic dealth of 150 people; these include nuclear families, international opera stars, 16 school children and many others.  Each person on that doomed flight has left behind those who are now mourning their loss. The rest of us ask — could this have been prevented and if so how?  Of course, the authorities directly involved must explore every avenue on how to prevent such tradegies in the future.  The March 27, 2015 New York Times present some startling and disturbing news about the co-pilot of the flight; this news was gained through the recordings found through the plane’s black box recordings. Computers and other documents have been recovered from the apartment of the co-pilot, Andreas Lubitz.   The doctor’s note said he was not supposed to be working on that day.  The question is — did the doctor have a responsibility to inform the airlines? You can read more about that here: Germanwings Co-Pilot Andreas Lubitz Apparently Tore Up Doctor’s Note for Day of Crash

It is important that when we go to medical providers we feel secure in the knowledge that the information we share is kept confidential. It is important that medical conditions not be used against us in ways that affect our ability to earn a living or live our lives in peace and security. For these and other reasons HIPPA: United States Health Insurance Portability and Accountability Act is very important and should be adhered to.  However, whereas the Act was basically ignored or only casually honored by some for many years, recently its adherence, in many instances, has become a mountain that serves more as a stumbling-block to sensible health care administration, than a tool of law and good commonsense. Questions as simple as – Can you tell me if my son, John Jones, has been admitted to the hospital today?– are met with, I am sorry, you have to go to administration; we cannot give out information about patients. There is a difference between: can you tell me why my son, John Jones was admitted to the hospital and was my son admitted to the hospital. Some health care workers use HIPPA as a blanket denial for any information at all, thereby creating anguish and antagonism. Read more about HIPPA here:   HIPAA definition – MedicineNet – Health and Medical.

Health care privacy is very important in America and in other developed countries. However, should one’s individual health care privacy always supersede the health, well-being and safety of others? If so, when and how should that happen? Should a pilot who is psychologically ill be able to hide his medical condition that later resulted in the murder of 149 others? Where does his right to privacy ends and the right of an airline to safeguard the lives of others begin? We learned in the New York times today that: “Co-Pilot in Germanwings Crash Hid Medical Condition From Employer, Prosecutors Say.”

“He was 100 percent flightworthy without any limitations,” Mr. Spohr said.  The doctor’s note indicated otherwise, but how would anyone know?

“But he said there had been an instance six years ago when Mr. Lubitz took a break from his training for several months. He said that if the reason was medical, German rules on privacy prevented the sharing of such information. Mr. Spohr said the revelation of Mr. Lubitz’s actions had left him stunned.” In this case, if the doctors believed that a part of Mr. Lutz’s condition could lead to a psychological breakdown while flying an airplane, should they be required to inform Lufthansa or Germanwings? Isn’t there a difference here that requires that employers or loved ones be warned about the safety of or the danger to others?

 “Some international airlines responded to the crash by introducing new rules requiring that two crew members always be present in the cockpit, after the French prosecutor revealed that Mr. Lubitz had locked the plane’s pilot out of the cockpit before starting the deadly descent. The airlines that said they were instituting a two-person rule in the cockpit included Air Canada, easyJet and Norwegian Air Shuttle.  All German airlines will introduce that requirement, the German aviation association said on Friday.

Thomas Winkelmann, the head of Germanwings, however, expressed doubt that such a rule would have prevented Tuesday’s crash.” The fact is – Lufthansa’s Germanwings did not have the information. How many other employees who hold the safety of others in their hands are also powder kegs waiting to explode? When, where and how should individual rights be protected while also protecting the rights and safety of others? How do we decide? When the employee is not forthcoming with this important information, who has the responsibility to do so? How do we accurately balance and protect individual rights and the protection of others?”  http://www.nytimes.com/2015/03/28/world/europe/germanwings-crash-andreas-lubitz.htmlThere are times when public safety and well-being MUST supersede individual rights. Deciding exactly when are the correct times, how it will be done and by whom seem to be the larger questions.   The links below take readers to various articles with some relevant questions; starting with the Edward Snowden leaks.  Was Edward Snowden justified in putting the national safety of the USA at risk, regardless of how well-intended his motives were? The Balancing Act of Individual Rights and Public Safety  … www.blscourierherald.com/opinion/212392551.html  – 

Ebola Scare Poses Dilemma: Civil Rights Versus Public Safety http://www.pressherald.com/2014/10/29/rights-versus-safety-in-ebola-cases-protecting-public-health-sometimes-tramples-on-an-individuals-liberties/

Balancing gun rights with public safety – The Washington Post  www.washingtonpost.com/…/balancingrightspu..

How Do Law Enforcement Balance Individual Rights Versus …  www.studymode.com/…/how-do-law-enforcement-balance-individual-ri

OneWorld Progressive Institute, Inc., is a small group of committed volunteers who produce community information and education television programs on health literacy, education and civic engagement.  We also find good information and post informative blogs about issues we believe shine light and are beneficial to many in our communities.  Learn more about us at our web site: www.oneworldpi.org/  and visit our Civic Engagement section at: http://www.oneworldpi.org/civic_engagement/index.html We are about Civic Engagement & Public Good.

https://www.youtube.com/user/oneworldpi/videos – OneWorld’s YouTube – See us also on: https://www.facebook.com/pages/OneWorld-Progressive-Institute-Inc/151551484879941  Please share our information with others. 

Watch our informative television programs on your public access channels: Frontier (formerly AT&T), Channel 99, drop down; Charter Communications Chan. 21  (Mondays at 7pm and Fridays at 4pm); and Comcast (Xfinity) Channels 10, 15, 18 & 26. We air on all Channel 18 multiple times weekly.  We air on Channel 26 (Hamden, NH & WH) Monday at 8pm, and on Channel (CT Valley) Wed at 8pm.

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Cancer Education through Short Videos – Ovarian

This OneWorld post consists of a number of short videos recorded by women (and doctors) who are being treated for Ovarian Cancer.  Several of the videos are by Sharon Nance, an African American woman who takes viewers through various aspects of her diagnosis and treatment for Ovarian Cancer. There are also a few videos from other women and a few physicians. The videos are short; you might want to watch them with others and one at a time. Having good information is always beneficial. Cancer is frightening, but being informed puts us ahead of the curve because it helps us to make the best decisions for ourselves and our families. The videos are placed in an order that best offers continuity. As you watch these programs, please bear in mind that a Pap test Does Not Diagnose Ovarian Cancer.

One of the blood test done to look for Ovarian Cancer is a CA-125 is a blood test.  According to WEBMD:  Cancer Antigen 125 (CA-125) – is a protein found on the surface of many ovarian cancer cells. It also can be found in other cancers and in small amounts in normal tissue. A CA-125 test measures the amount of this protein in the blood.

CA-125 is used as a tumor marker, which means the test can help show if some types of cancer are present. Most often, the CA-125 test is used to check how well treatment for ovarian cancer is working or to see if ovarian cancer has returned.  Learn more here: http://www.webmd.com/ovarian-cancer/cancer-antigen-125-ca-125

In watching the videos, you can pause, stop and rewind so that you can listen again to ensure you hear everything correctly.

OneWorld also wishes to point out that under the Affordable Care Act, women do not have to be afraid to get the check-ups they need, or be afraid that they cannot afford treatment. Insurance companies cannot deny treatment due to a pre-existing condition, and they cannot deny coverage for screening. The earlier we are diagnosed the better the prognosis (treatment outcome).

Know Your Rights and Protections Under the ACA at HealthCare.gov

Rights and protections | HealthCare.gov

https://www.healthcare.gov/health-care-law-protections/

Thanks to the ACA, insurers can no longer discriminate against people with pre-existing medical conditions and they cannot deny coverage. This is true for everyone; therefore, everyone (rich, middle-income and poor have the same access to care). if the Republicans are allowed to kill the ACA, it is the average and poor Americans who will suffer most. We ALL must speak up to maintain the Affordable Care Act for ALL Americans.

Learning to Cope with a New Diagnosis Begins with an Understanding of the Disease. The Minnesota Ovarian Cancer Alliance (MOCA) has an informative web site; please visit.

About Ovarian Cancer | MOCA – – www.mnovarian.org/about-ovarian-cancer/ 

Listed below are a number of short videos placed here to make it easier for visitors to find information and story threads with the same person you can easily follow. The first two links are to programs done by OneWorld. One is a short segment and the other is a full length program about Gynecologic Cancers with a segment dedicated to Ovarian Cancer.

1. OneWorld Progressive Institute, Health Forum with Yale Gynecologic Oncologist, Dr. Thomas Rutherford: https://youtu.be/eAZIHBaYzac The discussion here is on Ovarian Cancer Education.

2.  Drs Rutherford and Peter Schwartz take questions from women: https://youtu.be/TCJ-gcGY0L4

Most of the videos below are by Sharon Nance because her information is very comprehensive and presented in a manner that is easily absorbed by anyone. She is an excellent communicator. We also draw your attention to video #4 by Dr. Lisa Anzisi; please watch and share it.

3.  https://youtu.be/jc-KY79Apgw – Ovarian Cancer Signs and Symptoms = 5 mins (by MD)

4.  https://youtu.be/Ve3beab4zWs-  8:49 Ovarian Cancer: A Survivor Speaks- Part I. This is an excellent presentation by a pharmacist, Dr. Lisa Anzisi. This person is a medical professional and a patient. Her Ovarian Cancer was limited to the right side of her Ovary, and only to the immediate area. She was lucky to be diagnosed in Stage 1 of the disease. Her presentation is replete with excellent graphics and all relevant details. Please watch.

5.   https://youtu.be/0Za5l8X6n9Q – Sharon’s Many Faces of Cancer/ Living and Dying with Stage 4 Ovarian Cancer. Sharon Nance is a woman of color. Her information is very direct and presented in a casual manner. She talks of the insidiousness of symptoms and the importance of being proactive. Part 1 – 9:32 mins.

6.  https://youtu.be/8bkOhy2KmfI – Sharon talks about Herceptin Therapy for Ovarian Cancer. 8 mins (extremely informative).

7.  https://youtu.be/81dMaNk9cUo – Ovarian Cancer Shows up in the Breast = 2:30 mins. This video will help us to understand why Angelina removed her breasts first.

8. https://youtu.be/QgX1cuF7POo – Sharon’s Ovarian Cancer Symptoms. Pt 2 – 9mins

9.  https://youtu.be/2QUaEyD8PJk- Sharon’s Ovarian Cancer Care – Pt 4 – Treatment

10. https://youtu.be/GaZMYZ0AdSc – Sharon’s Ovarian Cancer Treatment – Pt5

11.  https://youtu.be/OAed2NNUtfU- Sharon’s Financing Ovarian Cancer Treatment (This video might have been made before the ACA became effective.)

12. https://youtu.be/FGZnDQiMik4 – Sharon’s Post after 7 months hiatus – Aug. 2014 8mins

13. https://youtu.be/dCwaanccP34    Ovarian Cancer Information = 11 mins 

The two videos below are very graphic; they show actual Ovarian surgical procedures. If you are uncomfortable seeing blood and surgery, please DO NOT watch these.  They do provide are excellent information about what is involved in aspects Ovarian Cancer surgery.

 14. https://youtu.be/8E5ClKIUy14 – Video of LIVE Ovarian Cancer Surgery = 14:30 – PT 1

15. https://youtu.be/EX6j-L_smVw – Video of LIVE Ovarian Cancer Surgery = 9:30 mins PT2

OneWorld Progressive Institute, Inc., is a small group of committed volunteers who produce community information and education television programs on health literacy, education and civic engagement.  We also find good information and post informative blogs ad videos about issues we believe shine light and are beneficial to many in our communities.  Learn more about us at our web site: www.oneworldpi.org/  and visit our web health section at: http://www.oneworldpi.org/health/index.html  Please share our information with others.  Watch our informative television programs on your public access channels: Frontier (formerly AT&T), Channel 99, drop down; Charter Communications Chan. 21, and Comcast (Xfinity) Channels 10, 15, 18 & 26.

http://www.oneworldpi.org/civic_engagement/index.html We are about Civic Engagement & Public Good

http://www.oneworldpi.org/education/index.html Education is at the Center of Our World

Visit our YouTube channel https://www.youtube.com/user/oneworldpi/videos – And see us on Facebook: https://www.facebook.com/pages/OneWorld-Progressive-Institute-Inc/151551484879941 We welcome getting “likes” on Facebook.

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Reaction to New York Times article, “Still Waiting in Selma.”

A few of my reactions, after reading the New York Times article, “Still Waiting In Selma.”

(By Khadija Hussain, OneWorld Intern)

The article, “Still Waiting in Selma,” points out some of the biggest institutional racial issues that still occur in present day America. A married couple, Hank Sanders and Faya Rose Toure examine the time that they spent in Selma, and the changes, or lack thereof, that have occurred since the historic marches.

This article points out some of the biggest institutional flaws in present day America. Most Americans assume that once an issue has been dealt with, it is over. In this example, we view the Civil Rights Movement as in the past, and resolved. The recent film Selma caused many to believe that the problems in Selma, Alabama, have been dealt with, and there is no need for African Americans to further list their grievances. However, this couldn’t be further from the truth. Just because the Voting Rights Act passed, just because segregation is no longer a law, doesn’t mean that there isn’t still a massive culture of discrimination today in the US. As the article points out, barriers to voting are a form of segregation against the poor, majority minority working class. The marches on Selma were progressive, but there is still work to be done.

When Sanders and Toure mentioned that their granddaughter graduated from a racially segregated school, I immediately felt anger and sadness that the blatant segregation of schools still occurs in some parts of the US, namely the South. I attend a school that is a healthy mix of Hispanics, blacks, whites, and Asians— an actual representation of America’s population. I feel that going to school with only people of the same race would be sheltering, and honestly, in my opinion, uncomfortable. Going to my school, I haven’t only had an academic education, but a social education, learning from people from different cultures and socioeconomic backgrounds. Many students who attend schools with only one racial and socioeconomic majority are often uncomfortable around people of different races and economic classes. This leaves students sheltered from the real world, and unable to communicate with people outside of their social bubble. And this doesn’t only apply to the rich; although that’s where it can be most clearly seen. Everyone needs to know how to talk to and learn from the people around them, regardless of race or background.

Another thing that stuck out to me was the quote: “Despite our city’s fame as a cornerstone of the Civil Rights movement, African-Americans in Selma who dare to discuss these issues openly and honestly are called racists, haters and worse.” This is true not only in Selma, but across the USA. In many cases, African Americans who complain about racial discrimination today are seen as ungrateful or ignorant. Why is this? There are still so many obvious racial barriers today; yet they are often ignored by much of the US’s white population. In many schools, the Civil Rights Movement is glossed over to seem like an issue that is in the past; as a result, many people insist that no racial discrimination occurs in the US, and that minorities have no right to complain. I completely disagree. Racial discrimination does exist today, and ignoring it won’t make it disappear. Instead, we have to speak out, honestly, about it, in order to make any kind of change.

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Break The Silence Against Domestic Violence (2nd in Series)

Domestic Violence is a scourge upon our American society.  We claim to be noumber one in so many positive ways; yet, more than 300,000 women and girls are raped, assaulted and abused in the USA annually.  Why is this and what needs to be done to put an end, or to at least greatly reduce this frightening statistic?  Please read on, and please watch the 10 mins of video linked in this block.  The 60 mins complete video is available from OneWorld Progressive Institute, Inc.

This number does not include those who are emotionally, psychologically and verbally abused daily. It does not include those who are coerced, intimidated, financially deprived and isolated from family.

Girls as young as 13 are in abusive relationships with 15-17 year-old boys who slap them around and who dictate with whom they may associate. Silence IS Affirming.  When you become aware of these abuses, please SAY something. Women and girls are NOT Men’s Property. Parents, grandparents, friends, teachers and other adults need to probe and ask questions if you see tell-tale signs of domestic abuse, or if you suspect that something is off; your child is not behaving normally.  Ask questions.  Let’s all ACT-UP and Speak-OUT against Domestic Violence. Please.

Please do ALL that you can to put an end to these abusive relationships.  These patterns are established early.  Please Watch and Share this 10 mins very informative video segment linked below; it includes young men, and adult men and women of multiple ethnicity.  They are speaking out against domestic violence. This is the second in a three part series done by OneWorld, Inc.  We thank all those who participated, and a special thanks to Tony Porter, A Call to Men, for his work.  He advises men to take a good look at how they interact with their sons versus their daughters.  Many men are acculturated from boyhood to devalue women and girls.  It is not necessarily a conscious process.  Tony advises men to break free of the “Man Box.”

https://youtu.be/ZnHUsGGIqoI  10 mins (A 1-hr DVD of this program is available from OneWorld)

  • If teenagers are slapping each other around, that is NOT about love; it is about physical abuse. 
  • Please step in and try to put a stop to that type of behavior. 
  • If your teenage boyfriend tells you that he hits you because you make him jealous,
  • Please talk to a trusted adult; get help to get out of that relationship.
  • Love is not about hitting; it is not about domination; it is not about control over a partner or a friend.  Love is not about being selfish, bossy and domineering.
  • Love is about caring; love is about self-respect and respecting others.
  • Respecting  a lover does not include hitting, bullying or verbally abusing that person;
  • it is not about dictating to whom that person can speak or associate. 

Call 203 789- 8104: 24 hour Domestic Violence Hotline for Greater New Haven

Emergency number is  9-1-1 & CT Coalition Against Domestic Violence is at 1-888-774-2900.

Children Abuse Hotline 1-800-842-2288 (DCF statewide line)

Visit CT Coalition Against Domestic Violence www.ctcadv.org/

 For help in Spanish: Para hablar o recibir ayuda, llama al 844-831-9200

To see all three segments of this video program visit OneWorld’s YouTube channel at:

https://www.youtube.com/user/oneworldpi/videos 

Learn more about “A Call to Men” here: www.acalltomen.org/

See Tony Porter’s powerful TED talk here: http://www.ted.com/talks/tony_porter_a_call_to_men?  At TEDWomen, Tony Porter makes a call to men everywhere: Don’t “act like a man.” Telling powerful stories from his own life, he shows how this mentality, drummed into so many men and boys, can lead men to disrespect, mistreat and abuse women and each other. His solution: Break free of the “man box.”

OneWorld Progressive Institute seeks to inform the community on health literacy, education and civic engagement.   Our informative television programs air on Frontier Cable Channel 99, throughout CT and on public access channels Charter Communications Chan 21, and on Comcast Channels 10, 15, 18 and 26 at various times.  On Comcast Channel 26: Hamden, New Haven and West Haven, OneWorld  Presents airs on Mondays at  8-9pm.  Please check your local schedule.

Visit our web site at: www.oneworldpi.org/  to learn more.  From our main page you may also visit our other contact areas such as our blogs, Facebook, Twitter and YouTube.

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Who Loves America? By Charles Blow

Charles M. Blow is a New York Times columnist

He writes on: Politics, Public Opinion and Social Justice.  In this piece he is addressing the comments made recently by Ruddy Giuliani, the former mayor of New York.  Those comments have generated a significant amount of responses from various people.

In this essay Mr. Blow takes us to task — he wants us to think. What does American  exceptionalism really means and to whom? How does one prove love of country and to whom should such proof be offered? Do those in positions on national leadership have a responsibility to be judicious in their utterances? Is there a price or cost for malicious and irresponsible histrionics? What exactly is “free” speech and for whom? Lastly, there are different types of love – sophomoric (poorly informed, immature, pretentious, overly confident), and committed love: that grows and deepens and strives for a fuller understanding; a love that holds on and strives to evoke the maximum potential as in America being its best self.

“We have arrived at the point where the utter tedium and desperation of personal attacks against the president about his life story and his loyalty are no longer news. The histrionics have shed their ability to shock. Most right-minded Americans — ethically speaking, not ideologically speaking — have moved on. But occasionally the insults prove to be accidentally instructive.

Take for instance what Rudy Giuliani (“America’s mayor”) said about the president last week at a dinner for Gov. Scott Walker of Wisconsin (a contender for America’s president). At the dinner — attended, according to Politico, by “about 60 right-leaning business executives and conservative media types” — Giuliani said, “I do not believe, and I know this is a horrible thing to say, but I do not believe that the president loves America.” He continued, “He doesn’t love you. And he doesn’t love me. He wasn’t brought up the way you were brought up and I was brought up through love of this country.”

“Yes, Mr. Mayor, it was a horrible thing to say, which is why you backpedaled. On Fox, Giuliani gave a meandering, mealy-mouthed defense of this vile statement, claiming, preposterously, that “I’m not questioning his patriotism,” explaining that he hears Obama “criticize America much more often than other American presidents” and questioning the president’s faith in American exceptionalism.

Ah, American exceptionalism again.

This is in part about a fundamental difference in views. It is a definitional difference, not about the meaning of love but about the meaning of America and its place in the world. Does exceptionalism — if one accepts the premise — bestow exemption from critique? Is uniqueness perfection? Does our difference require some sort of arresting of development?

“As the Pew Research Center pointed out in July, “the view that the U.S. is exceptional — standing above all other countries in the world — has declined 10 points since 2011.” At that time last year, 58 percent of Americans believed America is “one of the greatest countries in the world, along with others,” while only 28 percent believed America “stands above all other countries in the world.” (Whether this is truly a measure of exceptionalism or diminished standing isn’t completely clear to me.)

And what does it mean to love the country? We’re not talking about touristic love of the place — not the mountains and the valleys, the cities and the suburbs, the mighty rivers and the shores that kiss the oceans — but a love of the idea of America.

In a way, this is an ideological battle. Conservatism is rooted in preservation; progressivism advances alteration. These are different love languages. These languages turn on your view of change itself: When you think of America, do you see a country struggling to be maintained or one striving to be made better?

The president not only ran for office on the idea of change, but his presence — in both visage and values — is the manifestation of change. He not only represents a very real affront to the status quo and traditional power but is also not shy about pointing out where America can improve.

Our allegiance needn’t — mustn’t — be blind to be true. We must acknowledge our warts if we are to proclaim our beauty. Our aggrandizement must be grounded. We must be willing to laud America where it has soared and rebuke it where it has faltered.

America is a great country in many ways. But it is far from perfect.

America is a living idea. It isn’t only the tenets of its founding, but also the terms of its future. Every day, we make America.

Seeking to preserve and enshrine one vision of this country from one period of its past robs it of what makes it magical: its infinite possibility for adjustment.

“All men are created equal” is an exquisite idea, but one that wasn’t fully embraced when the words were written. We, the American people, have pushed this country to consider that clause in the broadest possible interpretation for hundreds of years.

We are engaged in a constant struggle to force America to “be true to what you said on paper,” as the Rev. Dr. Martin Luther King Jr. put it.

The concept of forming “a more perfect union” has embedded in it the idea of ambition but not perfection itself. There is room for betterment. America is not static. America is striving.

And sometimes, America requires critique. Jingoism is an avoidance of realism.  

You can simultaneously love and be disappointed in the object of your love, wanting it to be better than it is. In fact, that is a measure of love. Honest critique is a pillar of patriotism.

As James Baldwin put it, “I love America more than any other country in the world, and, exactly for this reason, I insist on the right to criticize her perpetually.”

You may visit Charles Blow on: Facebook and follow him on Twitter, or e-mail him at chblow@nytimes.com 

http://www.nytimes.com/2015/02/23/opinion/charles-blow-who-loves-am…?  All the highlights and colors were added to this essay by N’Zinga Shäni, OneWorld Progressive Institute, Inc.  These were done to draw attention and place emphasis on the highlighted sections.  The link immediately above takes you to the original essay on the NY Times Opinion page. We highly recommend other essays by Charles Blow such as:  A Kaffeeklatsch on Race – Feb. 19, 2015 - http://www.nytimes.com/2015/02/16/opinion/charles-blow-a-kaffeeklatsch-on-race.html?

OneWorld Progressive Institute, Inc., is a small group of committed volunteers who produce community information and education television programs on health literacy, education and civic engagement.  We also find good information and post informative blogs about issues we believe shine light and are beneficial to many in our communities.  Learn more about us at our web site: www.oneworldpi.org/  and visit our Civic Engagement section at: http://www.oneworldpi.org/civic_engagement/index.html We are about Civic Engagement & Public Good. 

https://www.youtube.com/user/oneworldpi/videos - OneWorld’s YouTube – See us also on: https://www.facebook.com/pages/OneWorld-Progressive-Institute-Inc/151551484879941

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